Opportunity Information: Apply for RFA AG 20 037

The Dementia Care: Home- and Community-Based Services (HCBS) (R01 Clinical Trial Not Allowed) funding opportunity (RFA-AG-20-037) is a federal research grant solicitation from the U.S. Department of Health and Human Services through the National Institutes of Health. It focuses on improving understanding of how people living with Alzheimer's disease and Alzheimer's disease related dementias (AD/ADRD) receive care in real-world home and community settings. The main purpose is to support research that examines the outcomes of care by first mapping which home- and community-based services are actually being used, then identifying what prevents individuals and families from accessing those services, and finally documenting gaps where needs remain unmet. In practice, the FOA is aimed at generating evidence that can inform better service delivery, policy decisions, and resource allocation for dementia care outside institutional settings.

This opportunity uses the R01 mechanism, meaning it is designed for substantial, hypothesis-driven research projects with clearly defined aims, rigorous methods, and meaningful expected contributions to the field. A key restriction is that clinical trials are not allowed, so the projects supported under this FOA are intended to be observational, analytical, or otherwise non-interventional. Applicants would generally be expected to study patterns of HCBS use, variations in access across different communities and populations, the relationship between services received and outcomes for people with AD/ADRD (and potentially their caregivers), and structural or practical barriers such as cost, availability, eligibility rules, transportation, workforce limitations, cultural or language barriers, and navigation challenges within fragmented service systems. The overall emphasis is on understanding outcomes and service gaps rather than testing a new treatment or running a controlled intervention trial.

The award parameters indicate an approximate maximum budget of $400,000 (award ceiling) per award, with an anticipated total of about six awards. The original application closing date listed for this announcement was February 3, 2020, and the FOA was created on September 16, 2019. The activity category is health research, and the CFDA listing associated with this opportunity is 93.866. Collectively, those details signal that this is a competitive NIH research funding opportunity targeted to dementia services research, with a defined budget scale and a limited number of awards, which typically implies a need for strong methodological rigor, clear significance, and a well-justified approach to data sources and analysis.

Eligibility is broad and includes many types of organizations that could reasonably conduct or support dementia services research. Eligible applicants include state, county, and local governments; special district governments; independent school districts; public and state-controlled institutions of higher education; private institutions of higher education; federally recognized Native American tribal governments and other tribal organizations; public housing authorities/Indian housing authorities; nonprofit organizations (both 501(c)(3) and non-501(c)(3), excluding higher education institutions in those categories); for-profit organizations (other than small businesses); small businesses; and other entities as further described in the FOA's additional eligibility information. This wide eligibility suggests NIH was seeking to encourage applications from academic research teams as well as public agencies, community-based organizations, and other stakeholders who have access to relevant populations, administrative datasets, service delivery networks, or specialized expertise in aging and dementia care systems.

In plain terms, the grant opportunity is looking for studies that clarify what services people with AD/ADRD are using to remain at home or in their communities, whether those services are meeting their needs, what outcomes are associated with different care and service arrangements, and what stands in the way when families try to obtain support. The expected output is actionable evidence about HCBS for dementia care, including where the system works, where it breaks down, and which unmet needs should be prioritized for future program development and policy attention.

  • The Department of Health and Human Services, National Institutes of Health in the health sector is offering a public funding opportunity titled "Dementia Care: Home- and Community-Based Services (HCBS) (R01 Clinical Trial Not Allowed)" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.866.
  • This funding opportunity was created on Sep 16, 2019.
  • Applicants must submit their applications by Feb 03, 2020. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • Each selected applicant is eligible to receive up to $400,000.00 in funding.
  • The number of recipients for this funding is limited to 6 candidate(s).
  • Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities/Indian housing authorities, Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, For profit organizations other than small businesses, Small businesses, Others (see text field entitled Additional Information on Eligibility for clarification).
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Frequently Asked Questions (FAQs)

What is the Dementia Care: Home- and Community-Based Services (HCBS) funding opportunity?

It is a federal research grant solicitation titled "Dementia Care: Home- and Community-Based Services (HCBS) (R01 Clinical Trial Not Allowed)" with the identifier RFA-AG-20-037. It is offered by the U.S. Department of Health and Human Services through the National Institutes of Health (NIH).

What is the main purpose of this funding opportunity?

The purpose is to support research that improves understanding of how people living with Alzheimer's disease and Alzheimer's disease related dementias (AD/ADRD) receive care in real-world home and community settings. The research is intended to generate evidence that can inform better service delivery, policy decisions, and resource allocation for dementia care outside institutional settings.

What types of research questions is this FOA trying to address?

It is aimed at studies that (1) map which home- and community-based services (HCBS) are actually being used by people with AD/ADRD, (2) identify what prevents individuals and families from accessing those services, and (3) document gaps where needs remain unmet, including how these factors relate to outcomes.

What does "HCBS" mean in the context of this grant?

In this context, HCBS refers to home- and community-based services that help people living with AD/ADRD remain at home or in their communities rather than receiving care in institutional settings.

What funding mechanism does this opportunity use?

This opportunity uses the NIH R01 mechanism, which is designed for substantial, hypothesis-driven research projects with clearly defined aims, rigorous methods, and meaningful expected contributions to the field.

Are clinical trials allowed under this FOA?

No. A key restriction of this opportunity is "Clinical Trial Not Allowed," meaning the supported projects are intended to be observational, analytical, or otherwise non-interventional rather than controlled intervention clinical trials.

If clinical trials are not allowed, what kinds of study designs fit this FOA?

Based on the description, appropriate projects would typically be observational or analytical studies focused on patterns of HCBS use, access, barriers, service gaps, and the relationship between services and outcomes in real-world settings.

What populations or settings are emphasized?

The emphasis is on people living with AD/ADRD and how they receive care in real-world home and community settings (rather than institutional settings).

What outcomes is the FOA interested in?

The FOA emphasizes examining outcomes of care after mapping which services are used, identifying access barriers, and documenting unmet needs. The overall focus is on outcomes and service gaps rather than testing a new treatment.

What kinds of barriers to HCBS access are mentioned?

The opportunity explicitly mentions barriers such as cost, availability, eligibility rules, transportation, workforce limitations, cultural or language barriers, and navigation challenges within fragmented service systems.

Is the focus more on creating new programs or documenting how existing services perform?

Based on the description, the focus is on understanding and documenting real-world use of existing home- and community-based services, the outcomes associated with different service arrangements, and where service gaps and unmet needs exist.

What is the overarching emphasis of the funded research?

The emphasis is on generating actionable evidence about dementia-related HCBS: where the system works, where it breaks down, and which unmet needs should be prioritized for future program development and policy attention.

How much funding is available per award?

The award parameters indicate an approximate maximum budget of $400,000 per award (award ceiling).

How many awards are anticipated?

Approximately six awards are anticipated.

When was this funding opportunity created?

The FOA was created on September 16, 2019.

What was the original application closing date listed for this announcement?

The original application closing date listed was February 3, 2020.

What is the activity category for this opportunity?

The activity category is health research.

What CFDA listing is associated with this opportunity?

The CFDA listing associated with this opportunity is 93.866.

Who is eligible to apply?

Eligibility is broad and includes: state, county, and local governments; special district governments; independent school districts; public and state-controlled institutions of higher education; private institutions of higher education; federally recognized Native American tribal governments and other tribal organizations; public housing authorities/Indian housing authorities; nonprofit organizations (both 501(c)(3) and non-501(c)(3), excluding higher education institutions in those categories); for-profit organizations (other than small businesses); small businesses; and other entities as further described in the FOA's additional eligibility information.

Does the FOA appear intended only for universities and academic medical centers?

No. The eligibility list includes many organization types beyond higher education, suggesting NIH sought applications not only from academic research teams but also from public agencies, community-based organizations, and other stakeholders with access to relevant populations, administrative datasets, service delivery networks, or specialized expertise in aging and dementia care systems.

What kinds of applicants might be well-positioned for this research?

Based on the description, organizations with access to relevant populations, administrative datasets, or service delivery networks related to dementia care in home and community settings may be well-positioned, including academic institutions, government entities, tribal organizations, nonprofits, and for-profit research-capable entities.

What is the practical end goal of the research supported by this FOA?

The practical goal is to produce actionable evidence that clarifies what services people with AD/ADRD are using to remain at home or in their communities, whether those services meet needs, what outcomes are associated with different care and service arrangements, and what barriers prevent families from obtaining support.

What does the FOA imply about competitiveness?

The description notes a limited number of anticipated awards (about six) and an R01 structure that typically implies a need for strong methodological rigor, clear significance, and a well-justified approach to data sources and analysis.

Is this FOA focused on institutional dementia care?

No. The stated focus is dementia care outside institutional settings, specifically in home and community environments.

Does this opportunity support research on caregivers as well?

The description indicates the research may examine outcomes for people with AD/ADRD and potentially their caregivers, particularly in relation to services received and care arrangements.

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